Duke researchers and affiliates may collect, use and share your personal information as part of a research study in which you have agreed to participate as a research subject or researcher, or in which your existing personal data are used. Often, when personal data are collected for research purposes, you will be provided a consent and/or authorization form that explains the types of data collected and the purposes for which such data are processed and shared. In such a case, the description of the collection and use of your personal information provided in the consent and/or authorization form will replace the information provided here.
Examples of data that may be collected for research purposes are listed below. These data categories are provided as examples only; not every research study will collect each of these categories of data. If you have questions about the processing of your data in connection with a research study, you should contact the Duke personnel who are conducting the research or the contact persons named in any informed consent form you signed when you joined the study.
Category of Personal Data |
Purposes of Processing |
Legal Bases for Processing |
Contact Information including your name, home address, email address and phone number |
To enroll you in a particular research study as a research subject or to administer the study if you are a researcher |
To process transactions requested by you and meet our contractual obligations Legitimate interests Your consent, if applicable |
Tax Information including tax identification number |
To report earnings from research participation as a research subject or researcher to the tax authorities |
To process transactions requested by you and meet our contractual obligations Legal compliance Legitimate interests Your consent, if applicable |
Family Information including family members, ages, occupations, and health |
To conduct research and improve understanding in fields of academic research |
To process transactions requested by you and meet our contractual obligations Legitimate interests To protect your vital interests Your consent, if applicable For archiving purposes in the public interest, scientific or historical research purposes or statistical purposes |
Employment History including prior employers, titles, wages, work experience, trade union membership, and disciplinary record |
To conduct research and improve understanding in fields of academic research |
To process transactions requested by you and meet our contractual obligations Legitimate interests Your consent, if applicable For archiving purposes in the public interest, scientific or historical research purposes or statistical purposes |
Education History including prior schools, transcripts, awards, honors and disciplinary records |
To conduct research and improve understanding in fields of academic research |
To process transactions requested by you and meet our contractual obligations Legitimate interests Your consent, if applicable |
Criminal Records including self-reported records and publicly available records |
To conduct research and improve understanding in fields of academic research |
To process transactions requested by you and meet our contractual obligations Legitimate interests Your consent, if applicable |
Demographic Information including race, ethnicity, gender, age, education, profession, occupation, income level, and marital status |
To conduct research and improve understanding in fields of academic research |
To process transactions requested by you and meet our contractual obligations Legitimate interests Your consent, if applicable For archiving purposes in the public interest, scientific or historical research purposes or statistical purposes |
Health Records including doctor’s records, surgical records, immunizations, and medications |
To conduct research and improve understanding in fields of academic research |
To process transactions requested by you and meet our contractual obligations Legitimate interests To protect your vital interests Your consent, if applicable For archiving purposes in the public interest, scientific or historical research purposes or statistical purposes |
Biometric Data including facial measurements, finger prints, and eye movement |
To conduct research and improve understanding in fields of academic research |
To process transactions requested by you and meet our contractual obligations Legitimate interests To protect your vital interests Your consent, if applicable For archiving purposes in the public interest, scientific or historical research purposes or statistical purposes |
Genetic Data Including genetic information obtained from your biological samples |
To conduct research and improve understanding in fields of academic research |
To process transactions requested by you and meet our contractual obligations Legitimate interests To protect your vital interests Your consent, if applicable For archiving purposes in the public interest, scientific or historical research purposes or statistical purposes |
Log Files including IP addresses, browser type, internet service provider, referring/exit pages, operating system, date/time stamp and/or clickstream data |
To conduct research and improve understanding in fields of academic research |
To process transactions requested by you and meet our contractual obligations Legitimate interests Your consent, if applicable |
Click this link for the full Duke University Privacy Policy.